- Who is conducting the study?
The study is conducted by the Wayne State University School of Medicine and the Duke University School of Medicine, in cooperation with the National Cancer Institute at the National Institutes of Health.
- How long does it take to participate?
The time will vary depending on your experiences. Generally, however, the survey will last approximately 45-60 minutes. If you consent to a blood draw or saliva collection, this will take approximately 10-15 minutes.
- What if I don’t want to answer all the questions?
You do not have to answer any question that you don’t want to. However, every question is asked for a reason and is important to the success of the study. Your responses will be kept confidential and no information will be linked to your name.
- How do I know that what I say will be kept confidential?
Your name and contact information are used only to tell you about the study. Your identifying information will be kept confidential to the extent permitted by law. All of the people working on this study are professional researchers bound by pledges of confidentiality. This study, like all research studies involving human participants, has been approved by an Institutional Review Board (IRB) which ensures the protection of participants’ privacy and confidentiality. When information about you is being processed, it will be identified only by your study ID#, not your name. The information that connects the study ID# with your name will be kept secure.
- Why should I consider participating?
The goal of this study is to help medical professionals better understand the factors that contribute to multiple cancer diagnoses. By studying individuals with one cancer and comparing their data to individuals with multiple cancers we can assess the inherited and non-inherited factors that contribute to these diagnoses. By participating in Detroit GEMS you are adding to an important body of knowledge that will hopefully lead to better cancer screening and prevention recommendations for future cancer patients and their families. We cannot advance cancer research without people like you and we appreciate you taking the time to consider helping with this project.
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